As some of you already know, I have been diagnosed with Idiopathic Pulmonary Fibrosis. This means that my lungs have been scarred due to inflammation, and the cause of the inflammation is unknown. Basically, my lungs are not in the best shape. I did some PFT's* and they concluded I have a 24% lung function. I have been on Prednisone (not pregnizone haha) and it turns out the inflammation is irreversible and so the only option left open to me is a lung transplant.
With 24% still going , I have been walking at 1/4 of my usual speed - and for those who know me - I never slow down so this has been difficult for me. I have lost the ability to exercise and need some oxy (oxygen) to preform regular tasks. As much as it is hard to slowdown, times like this open your eyes to little things you can so easily miss.
I've been referred The Toronto General to be assessed for transplant, to see if I’d be a good candidate for the surgery and the life after transplant. I have a series of appointments in Toronto, from December 12th to December 17th, which will determine my placement on the list. They do not transplant in Ottawa - my beautiful HOME CITY - so I have to relocate to Toronto once on the list. My momma Manon will be coming with me as my support person. She da best.
I just have to slip this in for my sake, not a leafs fan... Go Sens Go!
I plan to post updates on here from time to time as we journey down this road to transplant, it will be good to let everyone know what we are up to and how we are getting on.